Here a few things that might help you along the way.
QIGONG INSTRUCTION VIDEOS by NIC BAKER
https://www.youtube.com/channel/UCR3yCTTgjOOHVyx0NGdfmVQ
There are many YouTube video’s on QiGong. If you have favorites, I’d love to hear about them and I could call them out here.
https://www.youtube.com/results?search_query=qigong+for+beginners
The Chi Center with Master Mingtong Gu
This is a physically local Chi Center that is recognized world wide. Master Mingtong Gu developed an online course that is second to none, and is now restarting it’s retreats for, probably for us, intense Qigong training. It’s not free, however you can ask about their scholarship program, to bring those costs down.
Providers WE LOVE:
Marnie Shroeder - Psychotherapy: http://www.beemotionallywell.com/home.html
Lovelace Pain Clinic: https://lovelace.com/location/lovelace-womens-hospital-pain-clinic
Presbyterian Healthplex and Pool: https://www.phs.org/doctors-services/services-centers/supporting-services/Pages/healthplex.aspx#Fitness
Carmen Solano, MD, FDN: Functional Diagnostic Nutrition: https://infinitywellnessnm.com/ (505) 500-8356
Dede Okpareke, PharMD, RPH: https://olivetreecompounding.com/
Fibromyalgia Websites:
Power Health Talk http://powerhealthtalk.com/category/live-hangouts
Bateman Horne Center: https://batemanhornecenter.org/
Coping Techniques: http://www.fmnetnews.com/coping-resources/coping-advice
JAMA: http://jama.jamanetwork.com/article.aspx?articleid=199786
Fibro center website: http://www.fibrocenter.com/index.aspx
Fibromyalgia Network: http://www.fmnetnews.com/
Livestrong: http://www.livestrong.com/sscat/fibromyalgia/
Best Resources Connection: http://www.mindmeister.com/187436272/fibromyalgia-best-fibromyalgia-resources
The Pain Test: http://www.vox.com/2014/10/15/6895171/how-doctors-measure-pain-brain-scan-fmri
Fibromyalgia Questionnaire: http://www.scientific-consultants.com/cfs-qsym.html
Common Symptoms: http://www.spine-health.com/forum/discussion/7601/conditions/fibromyalgia/common-symptoms-fibro-originally-posted-terrijv-old-sh
CLINICAL TRIAL INFORMATION:
Comprehensive list of available clinical trials in ABQ: https://www.centerwatch.com/clinical-trials/listings/location/united-states/NM/Albuquerque
Albuquerque Clinical Trials: http://abqct.com/
Explaining your pain to others:
The Spoon Theory: http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
What's Wrong With Me: http://www.newyorker.com/magazine/2013/08/26/whats-wrong-with-me
Letters to Normals: http://www.fmnetnews.com/coping-resources/coping-advice/letter-to-normals
How to deal with people who don't believe: http://hubpages.com/health/How-to-Deal-With-People-Who-Dont-Believe-in-Fibromyalgia
Understanding Fibro: http://www.healthcentral.com/chronic-pain/fibromyalgia-287033-5.html
What it's really like to be chronically ill: https://www.themuse.com/advice/working-living-with-a-chronic-illness
The best pain scale ever: http://hyperboleandahalf.blogspot.com/2010/02/boyfriend-doesnt-have-ebola-probably.html
The Pain Test: http://www.vox.com/2014/10/15/6895171/how-doctors-measure-pain-brain-scan-fmri
Dear Patients: a letter to chronically ill patients by Dr. Rob
Letter from a husband: http://www.fms-help.com/spouse.htm
The Energy Envelope and Pacing:
Rating Scale: http://www.cfidsselfhelp.org/cfs-fibromyalgia-rating-scale
The Energy Envelope: https://cfsselfhelp.org/library/9-the-energy-envelope
Helpful Forms: https://cfsselfhelp.org/files/logsandforms.pdf
Special Events: https://cfsselfhelp.org/library/7-how-enjoy-special-events-and-minimize-price
Not To Do List: https://cfsselfhelp.org/library/making-a-not-to-do-list
Central Sensitization
Pain is Weird: http://saveyourself.ca/articles/pain-is-weird.php
Brain cells making us sick: http://phoenixrising.me/archives/25148
Brain cells making us sick part two: http://phoenixrising.me/archives/25310
Central Sensitivity: http://chronicfatigue.about.com/od/whyfmscfsarelinked/a/Central-Sensitivity-Syndromes.htm
Pain Catastrophizing
Research: http://brain.oxfordjournals.org/content/127/4/835.full.pdf
Pain is Weird: http://saveyourself.ca/articles/pain-is-weird.php
Coping with Pain: https://painhealth.csse.uwa.edu.au/pain-module/approaching-pain/
Video Explanation: http://www.youtube.com/watch?v=t1SBnvHM_fY
Four Phase Treatment Protocol by Patricia Fennell
Overview: https://www.albanyhealthmanagement.com/ourfocus_ffpm_qa.shtml
Low Dose Naltrexone Information:
LDN (low dose naltrexone) :
Opioid Antagonists for Pain PDF
http://www.lowdosenaltrexone.org/editorials.htm
http://www.ldnresearchtrust.org/fibromyalgia
Some doctors will refuse to prescribe this drug for reasons such as being ignorant to the usage and money motivation. Be persistent and show your doctors your research if this is something you would like to try.
* Though there is research that combines opioid usage doctors often request cessation of opioids prior.
Helpful therapies and treatments: http://curetogether.com/fibromyalgia/treatments/
MEDICAL MARIJUANA and CBD:
Helpful guidance on picking out the right stuff: https://www.leafly.com/
Bhang Chocolates: http://gotbhang.com/
Bhang Rep (Brandon): bringthelightnm@gmail.com
CBDbotique: http://thecbdboutique.com/
Article: http://leadinghealthindicators.com/fibromyalgia-is-marijuana-the-best-treatment/
How to use CBD: http://bengreenfieldfitness.com/2015/06/how-to-use-cbd-oil/
National Advocacy for Marijuana Law: www.norml.org
Chronic Pain and Marriage:
20 Tips For Supporting Her: http://goodmenproject.com/featured-content/marriage-20-tips-for-men-on-supporting-a-partner-with-chronic-pain/
5 tips Keeping Marriage Strong: http://www.babble.com/relationships/i-refused-to-let-stress-and-illness-destroy-my-marriage/
Gaslighting (it's all in your head): http://www.loveisrespect.org/what-gaslighting
Chronic Marriage: http://chronicmarriage.com
Is Chronic Pain Ruining your Relationship: http://www.cnn.com/2009/HEALTH/12/29/chronic.pain.relationship/
How To Survive: http://www.rd.com/health/wellness/how-to-survive-a-health-crisis-or-chronic-illness-in-marriage/#.
Address Caregivers: http://www.wellspouse.org/spousal-caregiving/the-caregiver-journey-pathways-to-an-authentic-and-fulfilling-life.html
Sleep Health Awareness
How does pain affect sleep? https://www.mattressnerd.com/pain-and-sleep/
Useful bedroom aids for people with disabilities: https://www.tuck.com/mattresses-bedding-for-people-with-disabilities/
Mattress and bedding guide for people with fibromyalgia: https://www.tuck.com/best-mattresses-fibromyalgia/
A very comprehensive overview of the connection between sleep and general health: https://www.bestmattress-brand.org/importance-of-sleep/
Improving your life while living with chronic pain
The Upside of Feeling Down: https://www.psychologytoday.com/articles/201501/beyond-happiness-the-upside-feeling-down?
This site discusses How Isolation Impacts Your Mental Health.
https://www.graniterecoverycenters.com/resources/how-isolation-impacts-your-mental-health/
Defining Emotional Wellness including information on improving yours:
https://definingwellness.com/resources/what-is-emotional-wellness/
AId AND SUPPORT PAGES For those suffering with chronic pain
Aid for Seniors, from Financial, Health care, Help with Rent, Food, Clothing, Transportation, and other daily life issues, this site maintained by volunteers is a great place to find information!
Their main page: Grants for Seniors and specifically for New Mexico: Grants for Seniors in New Mexico
Prescription Assistance: http://phoenixrising.me/living-i-the-basics/tools/saving-money-on-medications
Suicide and depression (prevention and coping) and tools you might find useful.
White Light Behavioral Health, a leading provider of addiction and mental health services in Ohio published an article on What can trigger a depressive episode?. Check it out as we are all human, and those dealing with pain and fatigue are prime candidates for something like this. If you are interested in checking out their website, it is https://whitelightbh.com/resources/what-can-trigger-a-depressive-episode/.
The Suicide Edition by Chronic Babe: http://www.chronicbabe.com/awap-wednesday-the-suicide-edition/
To Write Love on Her Arms: http://twloha.com/
National Suicide Prevention Hotline: http://www.suicidepreventionlifeline.org/ 1-800-273-TALK
Resources from The Recovery Village. They strive to be an educational resource by featuring helpful articles, blog posts, and resource pages to increase understanding and awareness of mental health disorders that can affect so many. Find information ranging from mental health support, co-occurring disorders, and addiction treatment options:
https://www.therecoveryvillage.com/mental-health/
I Am Alive: https://www.imalive.org/
This is from DrugRehab.com: Depression and other mood disorders are the number-one risk factor for suicide, but alcohol and drug misuse – even without depression – are a close second. We have created a guide to help people understand the connection between suicide and substance misuse. Here are two links to their information:
https://www.drugrehab.com/guides/suicide-risks/
https://www.drugrehab.com/addiction/alcohol/
This site seeks to provide resources for people struggling with clinical depression and reports to provide reliable resources and help when you or someone you love is struggling:
https://nationaldepressionhotline.org/
Drug and alcohol rehabilitation
A guide on addiction: https://www.addictionguide.com/
A drivers education resource: https://www.samndan.com/drunk-vs-drowsy-vs-distracted-driving/
Working with Stephen Schrader, a retired counselor specializing in drug and alcohol rehabilitation, MoneyGeek LLC built a resource to help people in recovery manage their finances. If you find yourself in pain, going through recovery, and financially hurting which you really don’t need at this time, check this out.
An interview with Stephen Schrader on how to manage finances while in recovery.
An interactive map with over 14,000 treatment centers utilizing SAMSHA’s directory of approved centers.
Managing your financial situation to avoid triggering a relapse.
Advice and resources about how to pay for drug and alcohol treatment.
Personal Finance for People in Recovery - https://www.moneygeek.com/financial-planning/resources/guide-financial-recovery-after-addiction/
Addiction Support Resource and Guide: https://www.addictiongroup.org/addiction/
Additional information on Alcohol Addition also called Alcohol use Disorder (AUD). If you think this might be an issue for you, this seems like very good information that you might find useful. https://alcoholrehabhelp.org/treatment/12-step-programs/
Social drinking vs binge drinking and Alcoholism:
social drinking and binge drinking
Addiction Resource will provide you with the best Addiction related facilities in New Mexico, based on criteria you can find on their “How We Choose” page. Their site: https://www.addictionresource.net/
Here you can find their results for New Mexico:
https://www.addictionresource.net/best-drug-rehab-centers/new-mexico/
Granite Recovery Centers presents two websites for your consideration. The second one, finding oneself isolated, has a high chance of being of value to some:
This site discusses the relationship between stress and alcohol, and brings in the concept of "alcohol use disorder"
https://www.graniterecoverycenters.com/resources/the-connection-between-stress-and-alcoholism/
Includes:
An informative video about Fentanyl
A history of the drug
What is looks like
Overdose awareness
Tips to help someone
Statistics and other helpful information
They also have a number on our site to connect to drug rehab specialists. They are available at no cost to answer questions, or direct individuals struggling with addiction to treatment options.
The objective of RehabSpot is to provide the necessary tools and information to help individuals and families in the community, focusing on recovery. Please check out their site: https://www.rehabspot.com/treatment/
Videos:
Awesome research videos http://powerhealthtalk.com/category/live-hangouts
Great video resource on many FM/CFS topics: https://www.youtube.com/results?search_query=bateman+horne
An update on Fibromyalgia: https://www.youtube.com/watch?v=jtc2JARVpPw
LDN low dose naltrexone (doctors speaking on amazing benefits) : http://www.youtube.com/watch?v=DAZ1fQKdOC8t
The Slow Death of Compassion for the Chronically Ill : https://m.youtube.com/watch?sns=em&v=6UyPlF66KME
The Bridge Between Suicide and Life (ted talk): http://www.ted.com/talks/kevin_briggs_the_bridge_between_suicide_and_life?
Other Helpful Links:
If you’ve ever had an MRI where they injected you with a contrast agent, that would have been Gadolinium, for which many it didn’t flush from the body, as they would expect. If this is true for you, I would recommend getting a provoked Heavy metal test, and if positive you can join the Gadolinium Toxicity support group: https://gadoliniumtoxicity.com/help/
Muscular System and Disease: https://scribeschool.net/muscular-system-info-for-scribes.html
Free educational resources, support, and information on the cancer Mesothelioma. https://www.mesotheliomahope.com/mesothelioma/epithelioid/
Another site for mesothelioma cancer as well as for Asbestos victims.
https://www.mesotheliomalawyercenter.org/
helpful resources on supplements and health modifications: selfhacked.com
Drug Interaction Checker: http://www.drugs.com/drug_interactions.html
Surgery tips and guidelines for anesthesiologist: http://www.prohealth.com/fibromyalgia/fibromyalgia-surgery-protocol.cfm?B1=FACEBOOK&utm_source=facebook&utm_campaign=facebook-fm-health-center
The dangers of synthetic fragrances: https://branchbasics.com/blog/2015/01/fragrance-is-the-new-secondhand-smoke/
Lyme Disease: https://www.lymedisease.org/lyme-basics/lyme-disease/about-lyme/
DME Genotype Panel Testing for drug accuracy: http://www.iversongenetics.com/dme-genotype.html
Genetic Resources for Pregnancy: https://yourdna.com/genetic-resources-pregnancy/
https://yourdna.com/safe-healthy-pregnancy-resources/
A good resource for Eye Disease: https://www.visioncenter.org/ with topics such as Astigmatism: https://www.visioncenter.org/refractive-errors/astigmatism/ and Types of Eyeglasses: https://www.visioncenter.org/eyeglasses/ and What is Color Blindness: https://www.visioncenter.org/conditions/color-blindness/ and a surprising number of other topics with detailed information.
This site is specially designed to help College students, focusing on mental health issues, it can be a resource for identifying symptoms in themselves or others and features a curated list of resources they can use to seek help:
https://www.perlego.com/knowledge/info/college-mental-health-resources/
Mollie’s RESEARCH PAPERS:
Disorders That Can Mimic Fibromyalgia: PDF
Common Symptoms of Fibromyalgia: PDF
Getting The Most out of Your Doctor Visits: PDF
Four Phase Treatment Protocol: PDF
Disability Questions and Answers: PDF
Humidifiers and Air Purifiers: PDF
Allodynia or Hyperalgesia: PDF
Sexual Complications: PDF
We Are NOT Doctors!
Info posted here should not be considered medical advice; it's not intended to replace consultation with physicians or other health care providers.
Everyone has and individual and varied path for achieving optimal wellness. While we hope to help make that path easier we believe you are responsible for staying informed and making good decisions. We assume no liability or responsibility for your personal health.
Links to other web sites are provided as a service, but do not constitute endorsement of those sites by abqfibro.com; we are not responsible for their content. We do our best to find the most relevant resources, if you find a link to be wrong or inactive please let us know so we can update them.