Clarissa Hoover
Tue, Mar 5, 3:30 PM (4 days ago)
to me
Hello, Fibro Friends! Clarissa, here - I attended my first ABQFibro meeting today. I was diagnosed in 2020 and have had symptoms for 30-50 years (depending on how you're counting). Since I found the group through this website, I wanted to drop a few lines here in the blog to update you on how you can get connected. We are meeting the 1st Tuesday of the month at 11:30, at the LOVELY North Domingo Baca Multigenerational Center. This is located a couple blocks north of Paseo del Norte on Wyoming with convenient access from I-25.
At our meeting today we were mostly talking about, y'know, our fibromyalgia; however, we spent a little time talking about how things are starting to look up a bit out in Internetland. I have found that the AskJan website is a great resource for figuring out workplace accommodations, and some others in the group recommended the CDC ME/CFS page as a resource for educating healthcare providers and others on what we're dealing with.
https://askjan.org/disabilities/Fibromyalgia.cfm
https://www.cdc.gov/me-cfs/index.html
We also talked about possibly starting an online discussion group that would make it easier to share ideas like these even when we're struggling with leaving the house. Is anyone else interested in that?
Thanks,
Clarissa